Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

21 May 2012

Bullying hits the homefront



My middle schooler son’s proclamation, on a Friday afternoon, many months ago, caught me off guard but did not completely surprise me. 

Zack came home from school and told me that another eighth grade boy slammed his locker shut as soon as he opened it and then another boy tried to trip him as he got off the bus. It really did feel like my boy had been attacked by two armies.

RED FLAG, RED FLAG! 

I was immediately on high alert.

"They" say that marijuana and alcohol are gateway drugs, I say that locker slamming and tripping are gateway actions to bigger bullying.





We deal with a lot on the homefront: absence of a father on deployment overseas and a child with Asperger’s Syndrome for instance, but I have felt lucky to have dodged the bullying bullet thus far. 
I've read the articles and the blog posts, watched the tv stories and thought, "thank G-d, at least we don't have to deal with that." 

So, that Friday felt like D Day to me.  The bomb had hit our home and I was not going to crawl into a bunker (my bed) and ignore it.

I have a lot of practice taking strategic action because I am a military wife and am used to fighting my way through rough terrain.

Thankfully, we have great counselors and support at our local schools.  I immediately emailed the counselor and alerted her to what happened and asked what we should do.  She told me to come to school the next school day so we could talk in person. 

So, I met with her and the school Resource Security Officer.  They both assured me, leaving no doubt in my mind, that they take bullying very seriously and presented the three options of the next step for us to take:

  •   Do nothing and see what happens (they discouraged this approach, of course.)

  • 2  The counselor has a chat with the offenders, telling them that the teachers in the area observed the bullying (so that my boy does not come across as a tattle tale), stress the gravity of the actions and that if it ever happens again, even once, specific actions will be taken and consequences will be given.  Charges of assault and court action can result.

  •  3  Immediately resort to the legal process by having the children meet with the school Resource Security Officer and other administrators and proceed from there.

I opted for number 2.  The counselor, officer and I agreed that we wanted to give the kids the chance to do the right thing.

So, we set plan in action.  After I left the school, the counselor pulled the locker bully out of class.  She told him what had been seen "by teachers near the lockers" and what the consequences would be if it happened again, even once.  She also talked with my son so that he would know that the adults at the school are on his side.  For an Asperger’s kid especially, this is probably one of the most important parts of the “story.”  My Aspie needs to know that the adults in the situation are on his side and will be there for him, knowing adults are approachable and receptive helps him feel safe in school.  

The counselor and my son teamed up to try to figure out the name of the "tripper" on the bus, and then she took the same steps with the bus bully.


The Next Day…

Zack returned home from school with shoulders slumped.  I asked him what happened and listened to him tell me that the locker kid held his locker shut while my boy tried to open it at the end of the day and that the bus boy had tried to trip him again.  To make matters worse, locker boy rides my boy’s bus and continually blocks his way from sitting at the back of the bus.

I called the school counselor who took the next step with the bullies.  I was not told what the step was but was assured the proper consequences were given.


Day 3

No bullying.


Fast forward, months later.

A few weeks ago, my son came home from school to tell me of a funny interaction with a child in his class.  He and the boy are working together and having fun doing it.  I asked my son to repeat the name of the boy he was talking about.  I asked him, isn’t that the boy who was bullying you?  His response was the best.  Better than I could have ever imagined: “Yes, Mom, but that was months ago.  We are over it and are friends now.”

16 February 2012

Another Day in Autism Land

The laws in Autism Land are different from the laws in Neurotypical Land and anyone with a kid who earned the family the right to live in A.L. can tell you this is true.  Sometimes the A.L. laws contradict the N.T. laws but in the end of the day, no matter how the N.T. world feels about it, the A.L. laws take precedent.

Sometimes you just have to cancel a dentist appointment. 

Is it considered illness, a legitimate reason for cancellation, when the reason, summed up, is Autism?

I've had dentist appointments for all four boys on the calendar for 6 months.  The office assistant called on Tuesday to confirm said appointments.  All was well, so I said we'd see her there, 9:00 Thursday morning.

Well, then Autism roared it's kooky head.

Zack has a week full of long term assignments (some past due), meetings for high school preparation, and tests.  He entered the house last night in a fog of frustration.  On top of it all, the school bus keeps getting more crowded and he never gets a seat to himself.  This probably sounds silly to anyone not affected by the sensory storm of Autism, but in our world, sitting smooshed against someone, other than family or a close friend, on a small bus seat, would be like having your seat-mate lick your cheek.  Really.  It's hard to understand, but kids with sensory integration disorder can feel "creepy crawly," crowded and confused, when strangers get too close.  At the end of a chaotic middle school day, Zack just wants his space and there's nothing I can do about it except understand how it ends his day with a boot kick to the brain. 

So, as we meandered carefully through the maze of homework, dinner and de-stressing, I mentioned that he could sleep in the next morning because he and his brothers had a dentist appointment.  You'd have thought I told him he had four more science projects and he'd have to sit with not one, but two, kids on the bus. 

It was an utter meltdown. 

Sometimes you just have to cancel a dentist appointment. 

It's a judgement call.  I hope the dentist office assistant understands, but it's the right call.  Taking Zack to the dentist today would have been bad for everyone.  Taking an already wound up sensory confused, frustrated kid with autism, to a place where they strap a paper bib to his chest, touch his face and stick their fingers in his mouth, would not have ended well for anyone. 

I'm the mom.  I have to try to make my boy's world as inviting as possible.  I try to help him avoid hostile environments of all kinds and to him, today, the dentist office would have been a battlefield, so I sent him off to school. 

Who'd have ever thought that middle school would be the lesser of two evils???

16 November 2011

Easy Money for Autism Speaks. Please Help!

Get a simple quote from Allstate between now and December 14 and they'll donate $10 to Autism Speaks! 

 

Allstate “Quotes for Autism Speaks” Aims to Raise $500,000
Initiative to support research for causes, prevention and treatment of autism

NORTHBROOK, Ill., Nov. 15, 2011 – According to autism statistics from the United States Centers for Disease Control and Prevention, an estimated one in 110 children in the U.S. are diagnosed with autism – a 600 percent increase in the past two decades. To help address this trend and support autism research and advocacy efforts, Allstate Insurance Company (NYSE: ALL) announced the launch of the “Quotes for Autism Speaks” program. As part of the program, Allstate will donate $10 to Autism Speaks for every insurance quote that is completed between November 14 and December 14, 2011, with the goal of raising $500,000 for the cause.

Individuals who receive an insurance quote will help Allstate reach the $500,000 goal and help change the future for those who struggle with autism. Quotes may be obtained online at AutismSpeaks.org/Allstate or by calling 866-998-4488.

“As a father of twin boys with autism, I recognize the magnitude of autism research, advocacy and outreach and the need to support families and individuals impacted by this disorder every day,” said Mark LaNeve, Allstate executive vice president, marketing & sales operations, who also serves on the board of directors for Autism Speaks. “Through Allstate’s support of this cause, we look forward to engaging families and communities to bring a stronger voice to Autism Speaks and support their mission.”

An estimated 1.5 million individuals in the U.S. and tens of millions worldwide are affected by autism. This year, more children will be diagnosed with autism than with childhood cancer, juvenile diabetes and pediatric AIDS combined.

“We are extremely grateful to Allstate for its commitment to raise awareness and funds for the autism community,” said Mark Roithmayr, president of Autism Speaks. “’Quotes for Autism Speaks’ is a wonderful program that has the potential to touch the lives of countless families affected by autism. We encourage everyone to show their support and contact Allstate for their free quote.”


About Allstate
The Allstate Corporation (NYSE: ALL) is the nation’s largest publicly held personal lines insurer known for its “You’re In Good Hands With Allstate®” slogan. Now celebrating its 80th anniversary as an insurer, Allstate is reinventing protection and retirement to help nearly 16 million households insure what they have today and better prepare for tomorrow. Consumers access Allstate insurance products (auto, home, life and retirement) and services through Allstate agencies, independent agencies, and Allstate exclusive financial representatives in the U.S. and Canada, as well as via www.allstate.com and 1-800 Allstate®.

About Autism Speaks
Autism Speaks is the world’s largest autism science and advocacy organization. Since its inception in 2005, Autism Speaks has made enormous strides, committing over $160 million to research and developing innovative new resources for families. The organization is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. In addition to funding research, Autism Speaks has created resources and programs including the Autism Speaks Autism Treatment Network, Autism Speaks’ Autism Genetic Resource Exchange and several other scientific and clinical programs. Notable awareness initiatives include the establishment of the annual United Nations-sanctioned World Autism Awareness Day on April 2, which Autism Speaks celebrates through its Light it Up Blue initiative. Also, Autism Speaks award-winning “Learn the Signs” campaign with the Ad Council has received over $300 million in donated media. Autism Speaks’ family resources include the Autism Video Glossary, a 100 Day Kit for newly-diagnosed families, a School Community Tool Kit, a Grandparent’s Guide to Autism, and a community grant program. Autism Speaks has played a critical role in securing federal legislation to advance the government’s response to autism, and has successfully advocated for insurance reform to cover behavioral treatments in 29 states thus far, with bills pending in an additional 10 states. Each year Walk Now for Autism Speaks events are held in more than 80 cities across North America. To learn more about Autism Speaks, please visit www.autismspeaks.org.

 

11 September 2011

IEPs and 504 Plans- Be Ready

504 Plans and Individualized Education Plans (IEPs) are the source of angst for many parents of school aged children.  I’m here to tell you that these plans work for kids, and they are worth the hard work required by parents and educators to get them right.  

I'm not going to beat around the bush, though, you have to work the system to get them and work even harder to get the plan to work for your child.  I’m definitely not here to bash the system, I want to arm you with the tools to get through the process and come out on top.

One of my sons has Asperger’s Syndrome, dyslexia and dysgraphia, and I suspect that one of my other sons has dyslexia as well. I’ve been attending IEP and 504 Plan meetings for eight years, so in this case, I really am a been there- done that mom. 


The most important thing that I’ve learned, and it’s been a hard lesson to learn, is do not let yourself be intimidated at the meetings.  It is easy to let yourself get overwhelmed by the sheer number of administrators, educators, counselors and specialists sitting at the table.  It has happened to me on more than one occasion and is very frustrating to walk out of the school building and suddenly realize that I did not succeed in getting my child what he needs.  

Here’s how to make sure each meeting is successful:

Know what you want.  Before you go to the meeting, decide what your objective is.  Do you want a 504 Plan for your child or an Individualized Education Plan for him?  504 Plans are simply educational and environmental accommodations for your child.  Teachers and administrators are obligated to follow the plan in every way possible to help your child be as successful in school as his or her peers.  An IEP is a list of goals and a timeline stating how and by when the goals will be reached.  Good information can be found online at sites like this: 504 Plan vs. IEP and this: IEP Goals.    

Lay the Groundwork. Start by contacting the teacher directly.  Sending an email is effective because it gives you a record of all contact.  Once you have made your inquiry, the teacher is obligated to follow up and get you the information you need and set up a meeting, if warranted.  

Be Prepared.  Now that you know what type of plan you want for your child and have a meeting set up, revisit the key websites and write a list of accommodations or goals for your child.  Be specific so that you can make yourself clear in the midst of all the voices at the meeting, which can be an emotional setting.  

Anytime a parent is working hard to help her child, emotions can take over, and levelheadedness is crucial to success at these meetings.  Showing emotion is perfectly fine, of course, but you have a clear mission and need to keep a clear head so that the desired end result is always in sight. 


Stay on Track.  Once you are in the meeting, keep your eye on the prize.  Unfortunately, oftentimes, the teachers, counselors and administrators see your goal of getting an IEP or 504 plan as just one more thing to do in their already busy week.  An IEP or 504 Plan creates more work for many people at the school.  If your child is getting by, they might try to talk you out of your plan.  DO NOT LET THEM DO THIS.  You spent a lot of time and energy getting your plan together.  You know what is best for your child’s education.  Stay the course, but do so nicely.  Keep a smile on your face and kindly refute their efforts to dismiss your concerns.  Getting your child a Franklin Speller is not the answer to helping him learn to deal with his dyslexia. (This was actually suggested to me at a recent meeting!)  If you know that your child needs real help to get an equal education, then be assertive.  Remember, you catch more bees with honey, so smile when you assert yourself, but show them you mean what you say and that you have no intention of backing down from your goal.

If you follow these steps, you will get your child what he or she needs.  It might seem like an insurmountable objective, but the system is set up to work for you, you just have to learn how to work your way through it.  

It is definitely a learning process, but hopefully the course will be easier now that you are ready for action.

Good Luck.

19 April 2010

Life with an Aspie

I recently learned that people with Aspergers Syndrome often refer to themselves as Aspies.  While having Aspergers can often make life more challenging, it is, at least, one of the lesser of the disorders on the Autism spectrum.  Some even say it is not a disability, but rather something that makes people special in a great way.

I have to agree with this classification.  Yes, it can be very hard to be the parent of an Aspie.  Knowing your child doesn't really have any close friends, knowing that each day at school can be lonely and a constant battle to keep his emotions in check might be as stressful for the mom as it is for the child.  We want our kids to be happy all the time.

But, the good thing about Aspies, many times, is that they are not unhappy in their less-than-social circumstances.  For instance, my Aspie son thinks of himself as quite popular at school.  He knows that kids think he is a nice guy, so he assumes this makes him popular.

My Aspie is really bright.  This works for him in more than one way.  First of all, he does very well in school.  This is great because it is one less thing for him to worry about.  He often gets overwhelmed by the amount of homework he has, but the work itself is usually not a problem for him.

He is also absentminded, though.  Every since he was 3 and started to read, I've called him my absentminded professor.  I didn't know then that he had Aspergers, but I knew he was crazy smart and more than a little spacey! Zack can get 100% on a history test, but cannot remember to put the ice cream back in the freezer after he scoops some into his bowl.

The other thing that being bright helps my Aspie with is his social skills.  While being appropriately social does not come naturally to him, he can learn social skills.  When I notice a situation that he doesn't handle quite right, like when he used to walk up to another child and start right into a fact about reptiles, I take the opportunity to model the correct behavior for him.  He can then internalize the behavior and act appropriately next time.  This process has helped my Aspie son fit in at school and helped make him a happier kid.

My Aspie has learned so much from the modelling that when tested, he can answer the questions in a way that makes it difficult to accurately diagnose him.


I highly recommend that parents of Aspie kids work gently, but hard with their kids to help them be more comfortable in the "real world."  I think our son will be more equipped for his future because of all the work he's done to learn the social skills.